Category Archives: WEGO Health Activist Writer’s Month

The Time Has Come, the Walrus Said, to Explain What “Mostly” Means

This post is part of the Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post a day for all 30 days. You can learn more about it here:http://info.wegohealth.com/HAWMC2012.

 

Today’s topic:

Learned the Hard Way. What’s a lesson you learned the hard way? Write about it for 15 today.

One of the questions that I get quite a lot since I switched over to this blog address (and title!) is “What is up with the ‘mostly’ in your title??” (Or some variation thereof.) Today’s HAWMC topic opens it up for me to write a post about it, and I think it’s been put off because a lot of people might take offense. So let me just say that I am just being honest and speaking only for myself.

One of the lessons that I’ve learned the hard way is that I need to stop when I suspect that I need to stop.  By that I mean that I often push myself beyond my limits – knowingly. And that is really want I’m talking about. It’s not the accidental overstepping, but the knowingly disregarding my limits.

There are times when I refuse to accept that I can’t do something that I want to do. So I go ahead and do it anyway. So I push myself to keep going even though I’m in a world of pain or I’m practically holding my eyelids open. I know that this is a bad idea.

This is why I say “mostly” blameless. We certainly aren’t to blame for the illnesses that we have, but I do think that I am sometimes to blame for how terrible I feel one day if I really pushed too hard the day before. I’m well aware when I’ve reached my limits, after all. I just don’t always know where that limit is going to be until I hit it.

But this is part of living with a chronic illness. Sometimes you push too hard because you want to attend an event or complete a project or go on a trip. It’s unreasonable to believe, at least in my life, that it’s possible to go through life skipping ALL those things that I want to be a part of. So sometimes I suck it up and go. And I pay for it. But, to me, it’s worth it.

My illness takes a lot from me, but there are some times when I’m just not willing to compromise. On those occasions, it’s my own fault that I’m feeling to downright nasty the next day. It’s a choice I make willingly, and I am the only one to blame for that.

Hmm.. on second thought, perhaps this is a bad example of a lesson learned, since I clearly haven’t quite learned it….

Advertisements

4 Comments

Filed under blog carnivals/grand rounds, coping, introspection, WEGO Health Activist Writer's Month

“I’m just going to write because I cannot help it.” -Charlotte Brontë

This post is part of the Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post a day for all 30 days. You can learn more about it here:http://info.wegohealth.com/HAWMC2012.

 

Today’s topic:

Writing with Style. What’s your writing style? Do words just flow from your mind to your fingertips? Do you like handwriting first? Do you plan your posts? Title first or last? Where do you write best?

 

I do sometimes plan my posts, in the sense that something will happen and I’ll think “Oh, hey, this would be an interesting thing to blog about. How could I write about this?” If I don’t have a topic sorted out, then I often won’t write a post until I do. That means that sometimes I don’t post an article about a topic until months later.

Once I’ve got the topic fixed, though, that’s the end of my planning efforts. For the most part, words flow directly from my head to my fingers on my keyboard. I usually go back and make a few edits, but mostly for spelling and punctuation. I almost never change the content or rearrange anything. Sometimes I won’t write a post on a topic until I can figure out a slant that more people will relate to.

I absolutely never handwrite any of my posts before typing them. This is sort of interesting, because people who know me in real life know that I love to send handwritten notes and cards.

Title writing is a constantly varying procedure. Sometimes I’ll think of a title that I like and write a whole post from there. Other times I’ll write an entire post then fail to post it until I come up with a title a few weeks later. If it’s a post for a blog carnival, then I often end up just coming up with something quickly, since the post has a due date. A lot of times, post titles are play on song lyrics, phrases, or various book/play/movie titles or quotes.

I invariably write sitting up in bed. It is definitely where I feel most comfortable and able to write a post that involves opening myself up.

Despite everything that I have written above, a large number of my posts are written in one rapid sitting. Sometimes I just have the urge to write, and I can’t help but write. Those posts get the most reads (according to WordPress’ stats) … maybe that should tell me something! 


Leave a comment

Filed under blog carnivals/grand rounds, WEGO Health Activist Writer's Month

My Dream Day

This post is part of the Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post a day for all 30 days. You can learn more about it here:http://info.wegohealth.com/HAWMC2012.

Today’s topic:

My Dream Day. Describe your ideal day. How would you spend your time? Who would you spend it with? Have you had this day? If not – how could you make it happen?

NOTE: This is the post for Saturday, April 14. I’m doing my best to keep up with the HAWMC topics day by day, but it’s proving hard with full time work.

This is an awfully hard topic, because it lends itself to my bitterness about all that I’ve lost. Still, here is my attempt.

I’d wake up (late!) and put in a little time for yoga and a workout.

By the time I got out of the shower, I’d be greeted with freshly ground and brewed coffee and some fruit. Which I could eat without issue, because I wouldn’t have to swallow any meds down with it.

I’d enjoy my morning listening to music, catching up on emails and my twitter timeline. Then I’d get dressed and pretty myself up. Then I’d head over to a coffee shop to curl up with a good book. A paper one, of course, because there wouldn’t be an issues with my wrists acting up.

I’d have lunch in a cute bistro, ideally with a friend. I’d be able to eat whatever I wanted, because I wouldn’t have to worry about gastroparesis or handfuls of meds irritating my stomach.

I’d have a job with flexible hours so I could head into work whenever I wanted. I think I’d still want to have a job to feel like I’m contributing to society, but maybe just part time.

I’d have all the energy I needed to make myself some fresh dinner. Without eating restrictions, again. (Sense a theme, do you?) Hopefully, someone would be around to eat with me.

After dinner it would be time to curl up with a nice glass of wine and that book again.

I’d head to bed where I would promptly fall asleep instead of lying awake because of the pain all night long.

Then I’d wake up actually feeling rested to do it all again!


Leave a comment

Filed under blog carnivals/grand rounds, introspection, WEGO Health Activist Writer's Month

10 Things I Couldn’t Live Without

This post is part of the Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post a day for all 30 days. You can learn more about it here:http://info.wegohealth.com/HAWMC2012.

Today’s topic:

10 Things I Couldn’t Live Without. Write a list of 10 things you need (or love) most.

NOTE: This is the post for Friday, April 13. I’m doing my best to keep up with the HAWMC topics day by day, but it’s proving hard with full time work.

(I’m choosing to skip the obvious ones like food, water, shelter, clothing, etc)

1. My comfortable bed, because I spend so much time sitting in it.

2. My Kindle/books.

3. My heating pad.

4. Epsom Salts. (Oh the wonders these do for my aching, swollen joints!)

5. The Internet, both to waste time and to connect me with the world when I’m stuck in bed.

6. My iPhone, because where would I be without twitter?

7. My music. Essential.

8. TV/movies/Hulu/Netflix Instant.

9. Herbal teas.

10. Supportive FRIENDS and FAMILY.

2 Comments

Filed under blog carnivals/grand rounds, coping, introspection, WEGO Health Activist Writer's Month

A Foggy Day (In Lupus Town)

This post is part of the Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post a day for all 30 days. You can learn more about it here:http://info.wegohealth.com/HAWMC2012.

Today’s topic:

Theme song. Imagine your health focus or blog is getting its own theme song. What would the lyrics be? What type of music would it be played to?

No.. I’m not in London (I wish!), but this song gets stuck in my head every time I have an episode of “brain fog.” It’s a Gershwin brothers tune that has been sung by Frank Sinatra, Billie Holiday, Ella Fitzgerald, Michael Buble… and even David Bowie.

Brain fog is when it feels like my brain is all cloudy. My thoughts just don’t connect. I forget everything, which often means that I leave things half finished. I lose things. I can’t remember anything. I’ll start talking then forget what I was saying half way through, I can’t seem to process what people have said to me, and I never do what they’ve asked me to do because I never remember that they said it. Once, a receptionist at the doctor’s office asked me to confirm my birthday and I stared at her for a good 30seconds before I remembered… and I’ve completely lost count of the number of loads of laundry I’ve forgotten in the washer! It sounds amusing (and sometimes it really is like when I find a phone in the freezer or my hairbrush in my socks drawer), but a lot of the time its just frustrating. It makes me look like I’m stupid, and I end up forgetting things I wanted to do and messing stuff up.

I love this song, because it reminds me that sooner or later this feeling will ease up soon, and that silver lining gets me through the frustration.

A Foggy Day (In London Town)

I was a stranger in the city
Out of town were the people I knew
I had that feeling of self-pity
What to do? What to do? What to do?
The outlook was decidedly blue
But as I walked through the foggy streets alone
It turned out to be the luckiest day I’ve known

A foggy day in London Town
Had me low and had me down
I viewed the morning with alarm
The British Museum had lost its charm
How long, I wondered, could this thing last?
But the age of miracles hadn’t passed,
For, suddenly, I saw you there
And through foggy London Town
The sun was shining everywhere.

Leave a comment

Filed under blog carnivals/grand rounds, coping, WEGO Health Activist Writer's Month

Dear 16-year-old me,

This post is part of the Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post a day for all 30 days. You can learn more about it here:http://info.wegohealth.com/HAWMC2012.

Today’s topic:

Write a letter to yourself at age 16. What would you tell yourself? What would you make your younger self aware of?

Dear 16-year-old me,

I could tell you all the things that are going to happen in the next 10 years, but I think it would take some of the fun out of living. So, instead, let me tell you the life lessons I have learned in that decade of life…

You…

…are so much stronger than you think you are. You can deal with so much more that life throws at you than you can even imagine.

…are not alone in this world. Friends and family will support you. Stop trying to do everything all by yourself. Life doesn’t work that way.

…need to remember that things that don’t always go the way you plan. You have to accept this, and believe that something else will work out that will still make you happy.

…ought to understand that some things aren’t meant to last. Enjoy them while you have them, and let them go in peace.

…need to believe that you are beautiful – no matter what. This means no matter the weight gain, the puffy face, the swollen joints, the hair loss, or the face rashes.

…should realize that friends who abandon you when they hear news that should make them want to support you were never truly your friends in the first place. Let them go. You’re better off without them.

…must learn to take chances. This means putting yourself out on that ledge that you’re so scared of, and not hiding behind your well-built wall that keeps people out so that they can’t cause you pain. Some things require taking a chance. Yes, you might get hurt … but you life can’t move forward without those risks.

…are a good friend to people, because you love and believe in them. They won’t always be good friends to you. Know that this doesn’t mean that you aren’t worthy of their friendship, but rather that they are not worthy of yours. You don’t need to be a loyal friend to people who aren’t loyal to you. Don’t waste time on people who don’t see your true worth. If they can’t figure out how wonderful you are, it’s their loss. Chasing after them won’t convince them to change their minds. Focus your energy on people who see and love you for you. Those are the people who deserve you.

…must do this most of all: Learn to love yourself. Learn to love yourself despite everything in life that makes you not want to. At the end of the day, only you truly know yourself, and if you don’t love yourself it’s awfully hard for you to let anyone else love you either.

There are so many more things I would love to tell you, but I think some things have to be learned through experience….

Love always,

Shruti

3 Comments

Filed under advice/suggestions, blog carnivals/grand rounds, coping, introspection, WEGO Health Activist Writer's Month

Keep Calm

This post is part of the Health Activist Writer’s Month Challenge hosted by WEGO Health. I will be writing a post a day for all 30 days. You can learn more about it here:http://info.wegohealth.com/HAWMC2012.

Today’s topic:

Keep calm and carry on. Write (and create) your own Keep Calm and Carry On poster. Can you make it about your condition? Then go to (http://www.keepcalm-o-matic.co.uk/) and actually make an image to post to your blog. 



Leave a comment

Filed under blog carnivals/grand rounds, coping, WEGO Health Activist Writer's Month